Best ag story in the world!

© AgMedia Inc.

International journalists have selected a Better Farming magazine story by Mary Baxter, about Lyme Disease, as last year’s best story

Photo: Mary Baxter

 

Comments

Congratulations, Mary. The farm community is lucky to have journalists like you write about important issues such as Lyme Disease. I can well imagine that your article helped people who were ill finally get the proper diagnosis.

Keep up the good work!

Wendy Omvlee

Congrats Mary and Better Farming . Great to see you get well deserved recognition .
Keep up the good work !

Congratulations on the award!

That article in May 2011 caused quite an increase in phone calls to the Canadian Lyme Disease Foundation from people looking for information on diagnosis and, prevention.

We still have people calling us as recently as last week stating they read the Better Farming article otherwise they would never of thought of Lyme disease as possibly being the reason for their illness.

Dr. Robbin Lindsay just this year made a public statement that we have far more Lyme disease that previously thought in Canada. He stated that 80% of Canada will be endemic for Lyme disease by the year 2020, just 7 1/3 years from now. This did not happen overnight and Canada has had a far bigger problem with Lyme over the past 3 decades that the medical leadership would admit to.

The number of cases officially confirmed in Ontario and the rest of Canada are only the tip of the iceberg as the vast majority of cases will never pass the restrictive definition of Lyme disease the government has set.

With magazines of the quality of Better Farming writing such articles it puts more pressure on the medical leadership to do the right thing. Now we await to see if the government is going to get serious and start funding good human tissue investigation to see how prevalent this disease is.

We have thousands of people in Ontario each year having various surgeries who have diagnoses or diseases or conditions that just happen to mirror Lyme disease.

Instead of throwing out tissues/fluid removed during surgery, a well designed study of this tissue/fluid designed wih the oversight of the Canadian Lyme Disease Foundation and their experts, to ensure public confidence in the study, should be undertaken right away. CanLyme wants to create a tissue bank asap and CanLyme will pay for the pruchase of the necessary -80 deg. freezers required for storage for whichever institution.

All MP's federally should support Elizabeth May's bill C-442 which does bring the victim's and their experts to the table which is long overdue in all diseases.

Again congrats!! I also want to thank Keith Poullos who suggested the idea to Better Farming to do a piece on Lyme disease after he read another Better Farming article on depression, which is a component of Lyme disease in many cases.

Jim Wilson
President, Canadian Lyme Disease Foundation www.canlyme.com

Well I am so glad that you did for all of us. It just goes to show Governments and Medical Associations what can happen if something is properly investigated. Although this is only a begining is is a brilliant start. This article should get everyone involved thinking in the right direction. Support is needed for doctors who have taken the intitiative to help not persicuted like they have been. These docotrs only want to do the job they signed up for and that to help people who are sick. We all applaud Better Farming to have the courage to research to write and to publish the truth about Lyme disease!

Congrats to Better Farming, Mary Baxter and her team. Wonderful job.

Keith Poullos

GTA Lyme disease support group.
Limehouse On!

As a Lyme sufferer in Ontario for the last seven years, I want to thank you for raising awareness of this disease. I went five years undiagnosed and saw over seventeen doctors. I finally went to the States for a diagnosis and treatment. Treatment is ongoing.

Farmers are on the front line for this disease.Early detection, recognition and treatment stops Lyme in its tracks.

Articles like yours will help this cause stay in the foreground getting it the attention it needs and help Lyme patients in everywhere.

Kim Kerr

As a person who has suffered with the complications of Lyme for over 30 plus years it was a welcome sight to see such an article. I was initually diagnosed with MS and education is key. Lyme can mimic so many diseases of unknown origin that I would hate to see people suffer needlessly. If I hadn't of done my home work god knows where I would be right now. The testing does not help those of us because it only looks at one strain and there are over 200 plus co-infections. Our doctors are not educated enough about this, so we rely on articles such as yours to bring awareness. Anyone with the diagnoses of MS, ALS, Parkinsons, Alzheimers, Fibromyalgia, Chronic fatigue, Depression, Bi-polar should look into this as alternative diagnoses. Don't count on a bulls eye rash because it only happens in under 20%. Many people don't even remember being bitten, because the tick is the size of a period at the end of a sentence and they inject a numbing agent before they gourge. Ticks can be found in your back yard. You don't have to be in the bush. Our dogs are contracting it at an alarming rate, but they have better testing and treatments. I wouldn't wish this disease on my worst enemy.
Leslie

I am dying from a few deadly diseases, and also have severe spinal problems, a pituitary tumour, ear pain, etc. They found that I was positive on the Eliza test for three types of Lyme disease, B.Burgdorferi, Afzellii and Garinii. Then they did the test again and said I was negative. Then they did a western blot test again and said it was equivocal. I lived in the type of surroundings that would've invited Lyme disease galore, for many years, but like most Canadians I was totally lacking in knowledge regarding Lyme dangers. There's probably not much point in getting my second likely cancer checked out (high abnormality in epithelial cells suggesting possible uterine cancer) if I have Lyme, because what's the point? The Lyme will continue to kill anyway. I have already had breast cancer as it is.

Lyme loves to destroy the epithelial cells. I also got scarring of the lungs recently and I don't even smoke, and now I'm starting to have worse heart-attack like symptoms than usual. I have had very severe muscle spasms for years and have been taking pills for them as well as pills to shrink the tumour which was allowed to grow to four times its original size when discovered.

After all of that, they put me on 2 weeks of Doxycyline. I have almost every Lyme symptom in the book, yet they find the disease hard to diagnose.

If I should go to the USA for diagnostics testing, or even to one of the Naturopathic clinics like the Nardella clinic in Calgary, recognized and approved by the government because it's supposed to be a good, reliable, and honest clinic, and if that clinic were to find out that there was no doubt I had Lyme (and indeed I know 100% for certain that there is no doubt), then neither the diagnosis nor the treatment would be approved by the government because they don't trust people who do too many tests.

How can you do too many tests? If you don't have the parasite, it won't show even if you do a million tests surely! And since this parasite can be seen under a strong microscope, why can't they look for it there? I can tell them exactly where to draw the blood if they want a diagnosis. I know the exact spot where most of the parasites are because they can be felt.

It costs approximately $800 to get the tests done either through a naturopathic clinic or in the United States, and then the treatment costs can add up to the thousands of dollars, which means that I will not be allowed the type of treatment that may kill the virus.

Many doctors have been fired both in Canada and the USA for treating Lyme disease patients, even after treating them so successfully that many left their wheelchairs for the first time in years. Insurance companies don't want to pay for the treatment, so they pay doctors under the table to go around saying it doesn't work, yet there are many living Lyme patients who did receive the long term treatment that state emphatically that it worked for them.

So again, which side appears more corrupt? The side that does too much testing, which should be impossible when a person has so many Lyme symptoms and deadly diseases, so much background that would've invited Lyme, and a sure suspicion even with Canadian testing that it is there (but never 100% confirmation), or the Canadian side that won't ever admit it's there?

Why won't insurance companies pay for longer term antibiotics? Since a high number of Alzheimer patients actually have the base of their disease as Lyme also, as well as high numbers of MS patients, and high numbers of Parkinsons, Chrohns, ALS, lupus, fibromalgia, and so on, is it really cheaper to treat the hundreds of diseases these people will get than it is to attempt to treat the Lyme itself?

All over the world they have pretty well the same testing standards for other diseases. Seems to me that the only reason they keep these two opposite standards going is so they have an excuse to actually "pick and choose" who they will save, and by what methods, and who they will kill. As far as I can see, there is no excuse in the world that they can't come to an agreement as to how they should treat this disease.

If we had honest government, and we had sitting on a panel, a group of expert doctors NOT paid under the table by insurance companies or government on one side, and we had the insurance companies on the other, and it was a fair and equal split versus the usual corrupt and dishonest split panel, I'm sure they could come to an agreement practically overnight -- if they wanted to, but it seems that they don't want to.

I'm losing my ability to walk, liver hurts, blood platelets have been falling for months, and so on. I have severe and advanced disk disease and osteorarthritis on top of the one cancer and now likely two. I have a large pituitary tumour and many serious skin problems. I also at one time lost my cognition for a few years and my sight is diminishing quickly.

Seems to me there is no better evidence in the entire world that I have it, especially when I lived next to forests for several years with a few cats and a dog who often brought home ticks (and even slept on the bed).

I don't know what will happen after I finish the two weeks of Doxycycline. I think it's like penicillin. If it doesn't kill the parasite within 2 weeks, then that means I may have to take this drug again and again, which will mean that it will become more and more ineffective as the parasite learns to develop a stronger and stronger resistance to it.

Tests in monkeys showed that this drug did not kill the parasites in two weeks which means basically, "Goodbye Charlie."
They did kind of suggest to me that this is it, as far as treatment goes. That's all I get and if they Lyme is still there, too bad. It will simply kill in a most incredibly painful and debilitating way, the same way so many others have died from.

Elizabeth May asked in the House if a National Lyme strategy could be implemented. When will we hear about that? In six or seven years from now? And just what is meant by "a national Lyme strategy? Does that mean with regard to testing or just treatment? We need a world Lyme strategy really.

Anyway, once I have finished my Doxycyline, I guess that means I will be free to donate blood, since I will be considered cured.

Corrections to the above title:
First Elisa tests positive to all three Borellia species (Burgdorferi, Afzellii, and Garinii.
Second Elisa test positive to only B. Afzellii.
First set of Western blot tests negative
Second set of Western blot tests negative.

From there, Lyme is a guessing game because I don't think there is any province in Canada with the proper equipment.

The Doxycyline I received was 100mg for 2 weeks. It was not given to cure Lyme but to help get rid of the painful underarm swelling and breast pain I had suffered from for weeks! No doctor knew how to treat infection! That really scared me because they wanted to believe it was all in my head! It especially scared me because I didn't think it was healthy to leave a breast inflamed when that breast had cancer in it before. I felt it could cause it to recur, but all doctors could say was, "Well, what do you expect us to do about it?" and I had to suffer for a long time.

Just because I have 100 symptoms of Lyme and owned many pets who slept on the bed and I lived within 50 feet of forests in Germany and down East where Lyme is prevalent, it doesn't mean I have Lyme so they don't think i have it.

Just because I have severe and advanced disk disease, osteoarthritis, lordosis, kyphosis, osteopenia, have had a hip collapse that left me crippled for six weeks and have had right upper leg pain ever since, as well as swelling in the hips and ankles doesn't mean I have it either. They think that most Lyme cases start in the elbows and knees, but I know Lyme isn't fussy.

Just because I have medical files many inches thick, have one cancer and now am waiting for the results of another, plus a pituitary tumour that has quadrupled in size to 1.2cm at last check, and have weird looking brain pictures (that look as though there is a huge giant white frog sitting on my head) doesn't mean I have it.

Just because I have had severe muscle spasms for many years and have been taking pills for it, doesn't mean I have it.

Just because one eye broke a blood vessel a few weeks ago, and then a couple of weeks after that, some of the fluid separated in the eye leaving me with a huge lifelong permanent large floater, and just because I often have numbness in the left side of the face and always very sore ears, especially the one on the left, doesn't mean I have it.

Just because I have diplopia in both eyes doesn't mean i have it.

Just because I have lost all of the reflexes below my waist (for several years now) and my spine is getting worse and worse, doesn't mean I have it.

Just because I'm losing my ability to walk, increasingly, fall often, and have broken five bones in my life, doesn't mean I have it.

Just because I have lung scarring when I don't smoke, doesn't mean i have it.

Just because I have had mega skin changes of all sorts, including a rare skin condition, doesn't mean I have it.

Just because my blood platelets kept dropping and dropping for months, and I sweat a lot at night doesn't mean I have it.

Just because I have a lot of problems with sneezing and sinuses, doesn't mean I have it.

Just because I often felt bug-like feelings under the skin doesn't mean I have it. (The only drugs I take are muscle drugs and drugs for the ever growing pituitary tumour so this isn't caused by any sort of drug addiction.

Just because I need to sleep about one hour out of every four, doesn't mean I have it.

As far as they could tell, I had no symptoms at all that might have suggested I had Lyme disease. I guess they have a secret list of criteria somewhere, that simply allows them to negate it on desire.

When people get two negative western blots, regardless of positive Elisa tests, this is what they base it on. It's kind of a guessing game then forced upon the specialists, who try to look at all the symptoms and then they tell you you don't have it. That's how it works in Alberta.

When people in Alberta get two western blot tests (Yes, look at the graph on their own Alberta web site, that means that what they do from there is pass the issue on to the specialist who then has to play the "guessing game", and since there was no indication whatsoever, that I had Lyme, how could they ever think I had Lyme just because Elisa tests were positive? That would've been nonsense obviously.

I was never told what the real criteria for diagnosing Lyme was, but I suspect it was "being a politician or a family member of one.)

Next I asked to be tested for Babesia, because I figured that if doctors were going to let my platelets drop down to death point (60 they claimed) before taking things seriously, and then I would require platelets or spleen removal, I could quickly die. I knew that no doctor would know that spleen removal would kill anyone with Babesia quite fast (or most).

It took the lab a couple of hours to figure out what test the doctor ordered, because I gave her the name of an official babesia microti IgG/IgM test (can't remember it exactly withoutchecking). It was copied from the American set of tests.

They didn't know what that was here. The only test they had for Babesia was listed under Malaria. And there were no other tests at all under Malaria -- just babesia.

So I asked if Babesia was the same as Malaria. They didn't know, but it was the only test under Malaria. They phoned all around, including to the pathologist, but nothing seemed clear, so they simply gave me the only test they could find for Babesia, which was listed under Malaria.

A few days later the results came back. I didn't have Malaria.
There was no mention that I didn't have Babesia, but at least I knew I didn't have Malaria -- that is, I wouldn't have had it, if the blood tests had been taken properly, but unless a few tests are taken about 6 hours apart, they really can't tell if people have Malaria either. So I "sort" of didn't have it but there was no guarantee of anything.

All they can do is look at slides, and the slides for Babesia and Malaria look different. They don't do darkfield microscopy here, so they have no way of looking for Borellia in the blood. People would have to get that done at some Naturopath's office, but I don't think they would believe it was mine even if they saw the Burgdorferi wriggling. If they can't trust one single American who does Lyme testing, how could they know that that was my test?

When I had some black tissue removed from my foot because I thought it might be yet another cancer (besides a second one I am waiting for results on), I asked if the foot specialist if he could submit the tissue for Lyme testing. He simply wrote "Lyme disease" on the report.

It seemed that every doctor in the province was too terrified of Lyme disease to take any concrete action. Too many doctors had lost their jobs over it.

They didn't want to check any tissue for Lyme disease, so that was the end of the tissue. They weren't interested, clearly.

Well, one thing I learned about the Babesia test was that they don't have proper testing for it, which is why they an only use slides. They look for something on those slides that's called a Maltese cross. Because they don't have the proper testing equipment, this is why Canadians are forced to go to the USA when they get negative Western blot tests.

When a patient receives negative Western blot tests (two in a row) that's when it's time to make the medical judgment based on "guesses." That duty is passed on to a specialist and he decides whether or not people have it based on living conditions that might have attracted it, as well as on symptoms. I obviously didn't have it so it was "Bye bye baby!"

I now had only one choice: go to the USA to be diagnosed, and if I was found positive, there was no way they would believe it, because it seemed they didn't seem to trust a single company in the entire United States! No, not one! That was why they wouldn't believe the results from any of them, I felt. What other reason could there be for refusing to acknowledge American testing?

The minute a Lyme person goes there, they will then be forced also to pay for their own medicines because they got their results not from honest people like Canadians, who don't recognize Lyme most of the time, but from those evil people.

Since Alberta and Saskatchewan have among the highest rates of MS in the world, and it has now been found that extremely high numbers of MS patients either have Lyme instead, which was misdiagnosed as MS, or Lyme as the base of their disease, and since they found the same with Alzheimer patients, Parkinson's patients and many others with a lot of nerve and spinal damage, it seems highly likely that not only does Lyme exist in Canada, specifically in Alberta and Saskatchewan, but that it may be extremely prevalent!

Oh yes, and I wanted to say that the 100mg Doxycycline I got for two weeks, not to cure Lyme (because it wasn't strong enough for that because it was so obvious I couldn't possibly have it), did work a couple of miracles. It reduced the underarm swelling and got rid of the breast pain. I also had no false heart attacks since (although it's only been a few weeks). The most interesting part was that all of a sudden, out of the blue, my blood platelets too a huge jump upward again, from 110 to 137. Wow, what a difference! It was almost as if even the 100mg had some effect on the Lyme I didn't have, because it had been falling for so many months before that. I also wasn't sweating like before.

I hope that will cure my non Lyme for awhile. I wonder if taking a dosage too weak (for non Lyme) would be like quitting penicillin in the middle if I did have Lyme.

I also have to say here that I tried to get copies of the BANDS for the Western blot tests, and to my surprise, the specialists don't have access to those. How can they do their jobs if half of the research material is hidden from even specialists? I then asked my doctor for the copies but he felt that if the specialist couldn't get them, neither could he. They aren't on Netcare, they say, because the tests go through the province, so doctor's don't have access to them.

After that, I phoned Health Link and they said that "only the person's doctor could get them -- not the specialist."

Wait a minute! Doesn't that sound totally insane? I didn't press my doctor further because I knew doctors were scared to ask for fear of their jobs.

Just as Canadian governments don't trust Americans, because they are seemingly so corrupt that not one single Lyme testing company there can be trusted, I somehow didn't trust that my results were negative either, otherwise, why did they not want to give me the bands? They could also have been hiding the fact that I did have Lyme disease and they knew it but wouldn't admit it. How can I trust them anymore than Americans, when they won't supply these bands even to the specialist?

What really upsets me about all of this is that, of all the people in the world who are sick, they have chosen to discriminate against Lyme patients specifically. If I had AIDS or something instead, I could've received treatment - or even if I had MS - but of course I will never know if I have that either because I clearly don't have any symptoms of MS either.

There is no way the Government of Canada is going to address this, it seems. That's the feeling I got when I spoke to my MP's office. The Federal government wants this fastest growing infectious disease in the world to become the total responsibility of the provinces so they don't feel responsible when all the people die -- you know, just as they might want to do if it were the bubonic plague. They aren't in any hurry to get to Elizabeth May's Bill and we probably won't hear more about it until after it goes to a committee in a year or so, and then they will put in on the back burner for another couple of years, likely.
"It's all about resources," they said.

Resources? You mean it's more expensive to avoid treating Lyme patients, than to look after them for 24 hours a day, day after day, after they become crippled, blind, or develop Alzheimers? I don't think so. I think this is just typical bad budgeting in the medical system as well as serious lack of equipment and knowledge because they have scared Canadian Lyme experts away. There is no one left to teach specialists.

I want my story out there in case I'm dead from all of those things in a year or two. It's long, but important because it's probably very similar to every other Lyme patient in Canada. The word needs to get out.

Who is truly corrupt here -- Americans for lying about Lyme disease, or Canadians for denying it? For some reason the disease is so smart it knows to stop dead at our borders.

try seeing a naturopathic doctor for IV Vit C /methylcyanocobalamine which is a form of B12 + glutathione and other things that can be used to help you boost your immune system and help your cancer..if it is an advanced ND they will know what to do to help your immune system...often insurance covers it or the cost is tax deductible. Navitol is a suppplement ( pine bark) and also the origin of some chemotheraputic agents but it is natural and can improve some of what you are feeling. Drink at least 2 litres of mineral non carbonated water daily if your kidneys and other organs can handle it but you must check with a knowledgeable health professional to be sure your body can handle that amount of water..even 1 litre is important....a ND will know what to do. Cant hurt.

I TRULY SYMPATHIZE WITH YOU...I ALSO AM GOING THRU THE SAME PRBOLEMS. I HAVE TAKEN DOXYCYLCINE MYSELF FOR 3 DAYS BUT IT WAS NOT FOR 5 MONTHS AFTER THE BITE..I COUDNT SEEMY mdFOR 5 WEEKS AFTER I FINSIHED THE HSOPTIAL TREATMENT WHICH WAS iv ECEPH ( NOT THE DRUG FOR LYME) AND THEN 30 DAYS OF KELFEX ( ALSONOT THE DRUG FOR lYME) oops caps sorry. I had to take 5 months off work( I have never taken time off work in 34 years for any illness! I have extreme fatigue/breathlessness//headaches/palpitations/ atrial fibrillation one night/ all cardiac tests were normal/ lost my balance and fell a few times / was sent for MRI /nothing showed-they thought I had a stroke but waited to do the MRI 30 days after the balance incidents(!) /muscle cramps/ joint pain 10 our of 10/numbness and tingling/ electric shocks through my hand/mental fog/ eye disturbances/general malaise , weakness /saw spirochetes in my blood multiple times under a live blood analysis microscope/ the Elisa test came back negative therefore I am not allowed to have a western blot test/ I am untreated by the medical profession for 11months now/ instead they want me to take antidepressants/I am seeing a naturopathic Doctor for immune system support and a PHd in Nutrition.They are both treating me but I am exhausted daily and sleep minimum 13 hours a day . I used to have to sleep 16-20 hours a day. My MD says supplements make no difference to your health.(!)I am waiting for the results from a USA Lyme test. I have been informed that legally I cannot be treated in Canada if it comes back positive.

I believe I contracted Lyme Disease a few years ago. I have been unwell since. A few bouts of missing work for several months and the doctors not be able to diagnose me ... just to suggest I may be depressed. Well, yes you would be feeling depressed if for no apparent reason you feel severly tired all the time, along with the body just feeling like it wants to quit on you. I have always been full of energy and very strong. I now am the total opposite. Since the last time I took sick leave for a few months I am still fighting these symptoms but have to try my best to keep going for I need to work. Its a vicious cycle. I will be seeing my internal medicine doctor next Tuesday, the same doctor I saw a couple of years ago and I want to suggest that she take all the proper testing for Lyme disease. I have no idea how she will feel about this after reading a few articles I found on the web. I would like to know what were the symptoms you suffered with so that I can compare it with mine. I have no confidence that there will be much done ... I feel sometimes the doctors just chalk it up to depression, age and stress. Any input on this matter would be soooo greatly appreciated.
Thank you!

They say that the Alberta cases got their Lyme from elsewhere. It was true that I lived in Germany and the disease ridden Eastern part of Canada where Lyme started in the city of Lyme, directly across from Plum Island. If you haven't seen Jesse Ventura's video on Plum Island, you might want to search for it now to see why there are so many cases in the East. Also search for the video called Under the Eightball (black and white documentary).

But how do they know where I got it? How do they know I didn't get it in Alberta? Just because they haven't "found" ticks carrying the B. Burgdorferi parasite, does that mean such ticks don't exist here?

Just how often have they gone tick hunting anyway, and how much field area did they cover to be able to arrive at this conclusion with so much certainty?

Several countries are now stating that they have found this deadly Lyme killer disease in their mosquitoes.

http://www.lyme.ws/ticks-and-mosquitoes-as-vectors-of-borrelia-burgdorferi/

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